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During the upcoming National PPI Festival 2024, the PPI Bursaries @UL Event will host exciting presentations from public and patient partners, community organisations and researchers, showcasing their research funded by the PPI Ignite Network at UL seed funding programme. Each presentation will highlight the important of participatory health research across a range of different areas.
Date/Time: Wednesday October 9th, 10am – 2pm
Location: Appellate Court Room, 3rd Floor, Glucksman Library, UL
Read more about the incredible group of presenters and their presentation subjects below.
Programme in development. Please keep an eye on this page for more information.
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Helen O’Leary – Building solid foundations for a group of patient partners with knee pain
Helen O’Leary is a physiotherapist based at University Hospital Kerry and a post-doctoral researcher at the School of Allied Health, University of Limerick. She completed her PhD at University College Dublin in 2016 on pain mechanisms and knee osteoarthritis in 2016. She was awarded a Health Research Board Clinician Scientist Post-Doctoral Fellowship in 2021. Her current KNEE-DEeP project is focused on translating evidence around early degenerative knee pain and osteoarthritis into clinical practice. She is interested in community and patient partners to develop
The Kerry Knee Health PPI Group was first convened in January 2023. They meet quarterly at The Rose Hotel in Tralee Co. Kerry and represent a group of patient stakeholders with knee osteoarthritis or chronic knee pain who have navigated our primary and secondary health care services. The group’s experiences and perspectives have informed the intervention currently being tested in the KNEE-DEeP study. They have also been involved in co-designing JointPain.ie, a website targeted at providing trustworthy educational resources to people with hip and knee pain.
This presentation will showcase the research results and highlight the Public and Patient Involvement component process. Proposed activities focus on enhancing the sustainability of a PPI panel currently being established. Our patient partners are adults with knee pain who access health services in the South-West of Ireland (1st meeting January 2023).
Matthew Hopper
Matthew is a retired Senior Lecturer in Design and Technology Education at Liverpool John Moores University and Ofsted Schools’ Inspector.
On retiring Matthew relocated to Ireland and participates in a range of conservation and environmental projects locally and nationally.
He has been involved in the PPI Group of the KNEE-DEeP study since its inception.
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Hilary Moss & Lisa Kelly – ‘We Will Tell Everyone!’: Songwriting as a Tool to Creatively Disseminate the Impact of PPI in Music Therapy and Dementia Research
Professor Hilary Moss leads music and dementia research at UL. She has over 25 years’ experience of working as a Music Therapist with people with dementia and was PhD supervisor for the work undertaken by Dr Lisa Kelly. She currently leads the MA Music Therapy programme at UL.
Dr Lisa Kelly is a music therapist from Galway and is the co-founder of Anam Music Therapy, a social enterprise dedicated to providing accessible music therapy services to those in most need. In 2023, Lisa completed her PhD research at the University of Limerick which explored telehealth music therapy for people with dementia and their family caregivers.
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PPI Contributors involved in the project ‘We Will Tell Everyone!’: Songwriting as a Tool to Creatively Disseminate the Impact of PPI in Music Therapy and Dementia Research
Dr Katie Fitzpatrick and Patricia O’Shea - “From Cacophony to Calm”: Developing a research partnership following participation in music therapy intervention research.
Since 2021, Patricia and Katie have been collaborating on journal articles, conference papers and roundtables, podcasts, research and events, an international special interest group, and most recently an edited book. While the relationship started as a researcher/participant one, this has evolved organically to a co-author partnership. Within this, the perspective of both the client and the music therapist can be represented, something that is rare in therapy research. Patricia and Katie are passionate about music therapy and it’s use for people living with chronic pain and brining this to a wide range of audiences.
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Dr Katie Fitzpatrick
Katie completed her PhD research in 2023 at the University of Limerick exploring the use of music and music therapy for adults living with chronic pain. She co-chairs the Special Interest Group on music therapy and chronic pain at the International Association of Music Medicine. She is currently working as Senior Music Therapist at the Pain Management Centre in the University of Limerick Hospitals Group in Ireland.
Patricia O’Shea
Patricia is a retired Primary School Physical Education Teacher living in Killarney, Co. Kerry in Ireland. She has a BSc. in Health and Fitness. She is a patient representative on the Music Therapy and Chronic Pain special interest group of the International Association of Music Medicine. She represents the patient lived experience of Music Therapy. She has been living with Chronic Pain since 2010, and has been a member of Chronic Pain Ireland (CPI) for a number of years. She highly recommends their services.
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Owen Doody - PPI Partners Intellectual Disability @UL with Down Syndrome Limerick & Autism Supporting Disability (ASD) Ireland
Dr. Doody is Assistant Professor in the Department of Nursing and Midwifery at the University of Limerick and a Registered Intellectual Disability Nurse with extensive experience in intellectual disability care, education, and research. His research focuses on specialist practice, community living, and supporting families, with involvement in several national healthcare projects. Owen is passionate about care, support and services for people with intellectual disability and works towards advocating and researching key areas affecting people’s lives.
The focus of our work was to build PPI partnerships locally with people with intellectual disability and services and for the PPI group to become actively involved in research which concerns them, embedding an ethos of inclusivity, where all voices are heard in the research process and service provision. To develop PPI capacity and awareness and broaden the scope of meaningful PPI in our health research study and practices. To develop a PPI footprint in UL, one which promotes and supports the involvement of people with intellectual disability in research practices. To improve the health and social experiences of people with intellectual disability, through the conduct of high-quality PPI research in the area.
Therese Hennessy is Associate Professor in Nursing and Midwifery at the University of Limerick. Specialising in psychiatric nursing and substance misuse and her research focuses on nurse education, mental health, substance misuse, and healthcare for individuals with special needs, including Down Syndrome. Therese is currently undertaking her PhD focusing on 3rd level education opportunities for people with intellectual disability.
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Mairead Moloney is Assistant Professor in the Department of Nursing and Midwifery at the University of Limerick. With a background in critical care and respiratory nursing, she specialises in nursing education, clinical skills, and simulation. Mairead is currently undertaking her PhD focusing on implementing reasonable adjustments in acute healthcare for people with intellectual disability.
Elizabeth Ryan - Publicity and recruitment campaign to establish a PPI panel to participate in cancer research at the University of Limerick, and University Hospital Limerick (UHL)
Elizabeth Ryan is Assoc Prof in Immunology in the Department of Biological Sciences at UL. She is a member of the Leadership team of the Limerick Digital Cancer Research Centre. Her current research focuses on immunity in patients with cancer. She is also a member of the steering committee of the Collaborative UL/UHL cancer PPI group.
The group co-designed materials to facilitate recruitment of new patient researchers. The resources created have enabled us to hold information days at UHL. The leaflets produced have been distributed to various cancer clinics at UHL and the video is shown on TVs situated in waiting areas at UHL and we hope that this will spark the initial conversation about PPI. We recently held an onboarding event for people interested in joining our group and we will continue to grow and develop over the coming years.
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